Date & Venue:
9th August 2022, Microsoft Teams (Online Meeting)
Key Highlights:
- Leadership & Organisational Updates:
- Clinical Commissioning Groups (CCGs) now rebranded as the Integrated Care Board (ICB).
- Tom Bassett (Partnership Transformation Manager) has left the council; Board thanked him for his contributions.
- ASD Helping Hands won the bid to manage the Norfolk Autism Partnership and Learning Disability Partnership from 5 October 2022.
- Data Controller responsibilities shifting from Norfolk County Council to ASD Helping Hands—Board members asked to consent to data transfer.
- Autism Norfolk Forum & Housing Discussion:
- Forum on Housing held in June with guest speakers from Shelter and Norfolk County Council.
- Concerns raised about inappropriate housing, rising rent, and lack of autism-friendly accommodations.
- Next forum to focus on Advocacy in September 2022.
- Diagnostic Data & Waiting Times:
- Presentation given on referral and assessment waiting times for children and adults.
- COVID-19 has increased waiting times despite backlog-clearing efforts.
- Challenges exist in data collection due to different reporting methods across services.
- Board requested regular diagnostic data updates.
- Pathological Demand Avoidance (PDA) Update:
- New Position Statement on PDA developed with input from Family Voice and Diagnosis Working Group.
- Need for PDA awareness training identified for GPs and healthcare professionals.
- ICB to explore adding PDA training to its professional development programs.
- Board Independence & Transition to ASD Helping Hands:
- New leader being hired for Learning Disability Partnership.
- Plans to secure a physical venue for meetings and expand social media presence.
Next Steps:
- Schedule Autism Norfolk Forum on Advocacy.
- Ensure smooth transition of data to ASD Helping Hands.
- Continue efforts to reduce diagnostic waiting times and enhance data collection.
- Develop PDA training resources for healthcare professionals.
Next Meeting: 11 October 2022, Microsoft Teams
To read the full minutes click here