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Meeting Details
Date: Wednesday 09 September 2020
Time: 11:00 – 12:30
Venue: Microsoft Teams Meeting
Agenda Item 1: Welcome and Introduction
1.1 Welcome and introductions made. MS Teams introduced and guides referred to. No reasonable
adjustments were requested. Members reported no declaration of interest.
Noted: Tom Bassett agreed to monitor Code of Conduct.
1.2 Prospective new members Richard Peat and Mel Rose introduced themselves. They observed the
meeting before making a final decision on whether to join the Board.
Agenda Item 2: Minutes of previous meeting (16/07/20) and matters arising not on the agenda.
2.1 Agreed: Minutes of previous meeting accepted as true record of the meeting. Will be added to the NAP
Webpages.
2.2 Actions from the Meeting held 16/07/20
2.2.1 Item 2.2.4: Covered by agenda.
2.2.2 Item 2.2.11: Covered by agenda.
2.2.3 Item 2.3.1: Covered by agenda.
2.2.4 Item 2.3.2: Ongoing.
2.2.5 Item 2.3.3: Covered by agenda.
2.2.6 Item 2.3.4: Completed.
2.2.7 Item 2.4.1: Ongoing.
2.2.8 Item 3.3: Completed.
2.3 Review of Action Log.
2.3.1 Autism Hoarding and Self Neglect
Covered by agenda.
2.3.2 Buddy Scheme, Strategy Multi-Agency Plan, and Data Dashboard
Administrator will distribute documents for a final time. Progress to be revaluated at next meeting.
2.3.3 NAPB Website Covered by agenda.
2.3.4 Tricky Friends Video
Walter Lloyd-Smith advised that most, if not all, of the submitted feedback comments were used to revise
the video. The full animation script has now been signed off, the studio is working on storyboards, and
will go into full production soon. Animation should be available for endorsement by the NAPB in the next
four to six weeks.
2.3.5 Safeguarding Locked Provision
Walter Lloyd-Smith advised that Covid-19 has delayed work, but invitations will be extended to
enable active participation of Partnership members soon. Walter will provide an update via the
Engagement Working Group, which will report into the Board.
2.3.6 Autism Training
Work ongoing.
2.4 Working Group Highlight Reports
2.4.1 The Diagnosis Working Group report will be circulated following the next Diagnosis Working Group,
scheduled for 10 September 2020.
2.4.2 The Workforce Development lead will ensure reporting clearly communicates what the
measures/targets are, to demonstrate that the training outcomes are being achieved.
2.4.3 Noted: All available working group highlight reports approved. Updates required on Data and Diagnosis Working Groups by next meeting.
Agenda Item 3: Presentation: Hoarding and Autism with Carolyn Watts
3.1 Carolyn Watts provided an update on a report completed by Dr Abi Oludeye (GP Specialist
Registrar) on Hoarding and Autism, following up on an earlier presentation to the Board by Walter Lloyd
Smith on behalf of the Norfolk Adult Safeguarding Board. This prompted the Board to identify a potential
link between autism collecting behaviour versus hoarding and self-neglect.
3.1.1 Noted: NCC will consider the recommendations of the report and explore options
Agreed: Ask those leading in NCC to work with the Diagnosis Working Group to develop the proposal.
3.1.2 Noted: Alison Furniss offered her experience of collecting behaviour and offer her support to any on
going studies. The Board welcomed her offer.
3.1.3 Action: Walter Lloyd-Smith will work with Tracey Walton to scope a venture with Sussex University for
a bid, through the National Institute for Health Research funding, to commission a study on self
neglect in the Norfolk community.
3.1.4 Action: Presentation and report to be circulated to members.
3.1.5 Action: Tracey Walton will link with Chris Scott within NCC regarding community work and future links with the Board regarding Co-production.
Agenda Item 4: Presentation: New NAPB Website presentation with Lee Gibbons, followed by approvals from the Board
4.1 Lee Gibbons outlined changes to the independent NAPB website since the last meeting:
-The draft website designed by Tracey Walton has now been transferred to new domain name
along with minor formatting changes.
-Newsletters can now be added as blog posts.
-Ability for visitors to add comments to pages added.
-NAP membership signup process has been streamlined for website engagement.
-Antispam, usage analytics and other technical processes have been added to the backend of the website. Certain key words, such as those from adverts for services, will be automatically
blocked. Monitoring of web activity applied to enable KPIs and reporting.
-All content will be aligned to government web content accessibility guidance.
For assurance, no data will be saved on the website itself. Any data is sent from the website, such as a
completed consent form, will be sent in an encrypted email to autism@norfolk.gov.uk, where it can be
processed by the Administrator. NCC will remain the data controller.
The Administrator is working to ensure all NAPB documents meet accessibility standards before they
are updated to the new website.
Tracey Walton provided the historic context for the move to an independent website, outlining criticism
from the Autism Norfolk Forum attendees and that it may be difficult for autistic people to see the Board as independent while it is ‘hosted’ on the NCC servers.
4.1.1 Agreed: Unanimous support for the move from the NCC hosted site to a NAPB Independent Website.
4.1.2 Action: Lee Gibbons, as Engagement Working Group Lead, will complete and submit the form to
request the NAPB hosted data is removed from the NCC webpages, demonstrating that this approach is
fully supported by the Board. The move from the hosted NCC webpages to independent website needs to be a smooth transition for it to go live. Tracey Walton will provide support to the Engagement Working Group regarding the forms and transition as required to achieve this.
Agenda Item 5 : Discussion around Member attendance and input outside of Meetings
5.1.4 Action: Lee Gibbons will investigate whether it is possible for visitor comments to be added to meeting agendas and other documents uploaded to the independent NAPB website. These comments could be used to share feedback at NAP meetings
5.2 The Board raised concerns regarding inconsistent responses to requests for feedback by Board
members. The Board acknowledged the pressure on resources to responding to the Covid-19 crisis. The
Board will consider the barriers for progress aligned the autism strategy and add this to the risk register for
mitigation.
Agenda Item 6 : Any Other Business and Wellbeing Check
6.1 The Board congratulated Tom Bassett on his successful appointment to the role of Transformation
Board Manager. Tom will manage ongoing coordination of the partnership with Tracey Walton continuing as the NAPB Autism Lead.
6.2 A definition of Pathological Demand Avoidance has been explored by clinicians and key stakeholders.
This will be discussed at the next Diagnosis Working Group and then brought to the Board for agreement
by October 2020.
6.3 Mel Rose thanked the Board for inviting her to the meeting and confirmed that she would like to continue as a member and be part of NAPB working groups.
Date, time and location of next meeting
-Thursday 05 November 2020, 11:00am-1:00pm, Microsoft Teams Meeting